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| OZQOL Conference Abstracts | |||
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Keynote Abstracts
Conference Abstracts The Quality of
Life of Mentally Ill People Living in the Community This paper will focus on the quality of life of mentally ill people living in the community. It has been my experience that the quality of life of mentally ill people in the community is quite a precarious thing indeed, this is largely due to the fact that the economic rationalist mode of deinstitutionalisation failed to put money into adequate community supports for mentally ill people. Consequently friends and relatives of the mentally ill person (who often have little or no mental health training) are forced to pick up the slack left by the government, due to the government abdicating its responsibility to the mentally ill (who are a very vulnerable group in the community, but are rarely seen as such). The chief failure of government in this area is that it doesn't realise that it actually costs more to have a mentally ill person inadequately treated the first time around, as the person is unable to access employment if they are ill. Consequently, they are kept welfare dependent for longer periods of time, it also costs the government more in terms of more G.P. visits and more pharmaceutical subsidisation when a person is in a chronic phase of mental illness. This is due to the mind-body connection, as a person in a chronic phase of mental illness is likely to suffer from physical ailments such as: migraine, sleeping difficulties, T.N.J. nerve pain (due to the grinding of teeth during sleep which upsets the nerves in the jaw), irritable bowel syndrome, gastric reflux, stomach ulcers, colds and flu (due to the immune system being run down due to lack of sleep), diarrhoea and nausea. This incredibly large amount of stress-related ailments can be avoided if the person can progress through the mental health system smoothly, and have their mental illness treated properly and realistically the first time around. This can allow their illness to go into remission, and allow them to have their illness managed by a mental health practitioner in the community; while they prepare (with the assistance of the Psychiatric Employment Network, if they wish) for a return to work and a productive life, which is far better for both them and the government economically (as we all know that governments are completely obsessed with the bottom line).Furthermore the lot of the mentally ill person could be greatly improved if the media could portray them far more realistically, as far too often the media (particularly the tabloid media) are portraying the mentally ill person as violent, dangerous and out of control. When in reality, the mentally ill person is far more likely to harm themself than to harm others, as the risk of suicide is always there. Contact with nature
and positive affect: An evolutionary analysis The presentation will
report the results of two separate, yet related studies into biophilia.
Based in evolutionary theory, the biophilia hypothesis proposes that an
innate attraction to nature, continues to exist today, and as such, facilitates
psychological well being. Details of the first study include the development
of a feeling good schedule (FGS), designed to measure the intensity of
feelings and frequency of exposure to stimuli that facilitate ‘good feelings’
in children. A total of 160 children nominated the top five activities,
things or places that made them feel happy, excited, calm or relaxed.
Further, senses-based discussions yielded stimuli for each sense. Anethical defense
of the utilization of an ideal theory of quality of life for the purposes
of making best interests decisions in acute medical and nursing practice The Subjective
Quality of Life of Carers of People with Mental Illness The definition and measurement of subjective quality of life is perhaps the best way to investigate individuals perceived well-being.This construct can be effectively used to describe populations, gaining an indication their subjective quality of life across a number of life domains including material well-being, health, productivity, intimacy, safety, place in community and emotional well-being.Carers of people with mental illness experience considerable burden and distress that is likely to impact on their subjective quality of life. This research compared the subjective quality of life a sample of primary carers of people with mental illness, with a sample of individuals who do not care for people with disabilities.It was hypothesised that carers would show significantly lower subjective quality of life than the comparison sample.Questionnaires were distributed to the carer sample recruited from the Schizophrenia Fellowship of Victoria and the comparison sample recruited from a list of people who have participated in previous Deakin studies.The results show support for the hypothesis.Carers of people with mental illness had significantly poorer subjective quality of life, across all of the life domains except place in community, than the comparison sample. Perceived control
and subjective well-being Primary and secondary
control are now widely acknowledged as important concepts to consider
when attempting to understand the link between control and well being.
However, conflict regarding how these constructs merge to shape well being
has manifested itself in a primacy debate. This conflict is effectively
a question of the relative importance of primary and secondary control
for individuals at different ages, and from different cultural backgrounds.
In order to address the primacy debate I have produced a new model of
primary and secondary control. According to the situational/ global model,
in order to adequately comprehend the relationship between primary and
secondary control and well being, it is important to consider primary
and secondary control at both the situational and global level. As a result
of this approach three types of control are proposed as being important:
situational primary control, situational secondary control and global
secondary control. The goal of the following paper is to present the proposed A national index
of subjective well-being The paper will outline
a proposal for a national index of subjective well-being. The proposal
is currently being considered by an Australian health insurance and investment
company. The aim of the index is to promote greater public and political
awareness of the social factors underpinning well-being. The proposed
index is based on twice yearly polling of a national sample of adult Australians
and constructed in two parts. The first is a 'core' index which is intended
as a device to track changes in subjective well-being over Life satisfaction
homeostasis and the role of personality It has recently been
proposed that a homeostatic mechanism operates to maintain life satisfaction
within a narrow adaptive range and that neuroticism and extraversion are
central to this homeostatic system. However, it is unclear whether the
strongest personality predictors of life satisfaction are neuroticism,
extraversion, or conscientiousness. It is also equivocal whether the areas
of life, such as work, are Life in the 21st
Century: Increasing Mental Health or Increasing Pathology?
Wilson's biophilia hypothesis includes the claim that, as a consequence of evolution, humans have an "innate tendency to focus on life and lifelike processes." A review of various literatures converges to support this central claim. One area of support for our innate affiliation with nature comes from research demonstrating increased psychological well-being upon exposure to natural features and environments. Support also comes from the strength and prevalence of phobic responses to stimuli of evolutionary significance and near absence of such responses to potentially dangerous human-made stimuli. That survival emotions of equivalent intensity and prevalence have failed to develop in response to modern life-threatening stimuli can be explained by the extremely rapid process of change and progress that has occurred post World War II and continues at an ever increasingly rapid pace. Given that our modern ways of living, as prescribed by Western industrialised culture, stand in stark contrast to our evolutionary history, it is proposed that we may currently be witnessing the beginnings of significant adverse outcomes for the human psyche. The Quality of
Life of People with Multiple Sclerosis and Their Partners: Newly Diagnosed
versus Long Term Diagnosed. This research seeks
to analyse how people with MS and their partners maintain their subjective
quality of life. Specifically, this research is interested in comparisons
between the subjective quality of life of people newly diagnosed with
Multiple Sclerosis, those living a longer time with Multiple Sclerosis,
partners of people with Multiple Sclerosis, and a group of people not
affected by Multiple Sclerosis. This research hypothesised that these
different groups of people have different levels of subjective quality
of life and Factor Stability
of the Schalock and Keith (1993) Quality of Life Questionnaire The 1990s saw a significant change in how governments viewed publicly provided services. In the area of disability service provision it has been suggested that service providers could demonstrate their effectiveness with reference to the quality of life of their clients. One instrument often used in quality of life research for people with intellectual disabilities is the Schalock and Keith (1993) Quality of Life Questionnaire (QOL.Q). However, before this instrument can be used with confidence its reliability must be demonstrated. Given the potential factor stability problems highlighted by past research this paper further investigates the stability of the four factors of the QOL.Q over various heterogeneous sub-populations. We find that the QOL.Q factors consistently and when analysed across various sub-populations the four factors have a high degree of stability. We conclude that the QOL.Q is a reliable instrument and thus suited to the measurement of outcomes in the provision of services. Quality of Life
and Sense of Coherence in
People with Arthritis
This study investigated
the physical and psychological impact of arthritis on peoples quality
of life. A range of variables were examined in a sample of 375 participants
who comprised three groups: people with arthritis receiving a support
based service from the Arthritis Foundation of Victoria, people with arthritis
receiving standard treatment, and agroup of people from the general population.
The results revealed that the two arthritis groups reported a significantly
higher level of functional impairment, pain, and negative
Tertiary Students
Stories of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.
My research with tertiary
students with ME/CFS, has gathered the stories of forty participants,
enrolled since 1995, at thirty-three Australian Universities and TAFE
Institutions. The expected themes of difficulties meeting the physical
demands of the institutions and of illness experience appeared, but another
theme emerged - of the political struggle of the participants with discredibility,
disbelief, and disempowerment of a newer poorly understood, badly named
and defined invisible disability. Out of these
Damning with faint
praise: Indefensible weaknesses in health-related
quality of life instruments. Rod
O'Connor
What does validity
mean in health-related quality of life measurement? Seemingly not a lot
to do with patients views of their health-related quality of life. This
paper examines a range of instruments to argue that HQoL instruments are
generally flawed and without demonstrable sensitivity. Arguments for the
validity of health measurement instruments tend to be based on general
and loose patterns of results, when criterion-related validity based on
direct patient report is needed. The absence of criterion-related
Balancing personal,
relational, and collective wellness.
The paper will present
an ecological model of wellness developed by a team of researchers in
Canada. The team, entrusted with the task of formulating values, programs
and policies for the promotion of child and family wellness, created a
model of wellness based on empirical research and social values. The paper
will describe the different components of wellness and present the underlying
empirical and philosophical reasoning behind it. The model proposes that
wellness is achieved by the satisfaction of personal, collective, and
relational needs. These needs, in turn, are satisfied by the presence
of cogent values, adequate psychological and material resources, and effective
programs and policies. Values such as caring, compassion and justice attend
to diverse personal, relational, and collective needs. Psychological resources
such as self-esteem and social support contribute to wellness, as do material
resources. Programs and policies, in turn, target the needs of individuals
and communities by offering educational,
Children and Nature
Concern for the environment
is linked to people's childhood experience of the nature as well as to
their childhood perception of the natural world as alive and conscious.
This nature connection is fostered mainly by parents and other significant
adults in the child's life. My study looks at three aspects of childhood
nature connection. I have interviewed a range of people connected with
nature, from organic farmers to forest activists, landscape painters to
nature religion practitioners to explore the roots of their nature
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Updated: 5 August 2001 Site Information Please direct all general ACQOL enquiries to Professor Bob Cummins. Site designed and maintained by Belinda Lee . |
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